It’s one month since Indian Country Today Media Network unexpectedly went on hiatus and ceased active operations. I’m in trouble. Most frustrations I have are not unique even as a multiply-disabled doubly neurodiverse Nanticoke and Lenni-Lenape Native American WOC, but they are humiliating.
Sisters of Frida joins Deaf and Disabled People’s Organisations (DDPOs) from across the UK in Geneva this week to present evidence of violations on disabled people’s rights to the UN Committee on the Rights of Disabled People (UNCRPD)
In a closed session on Monday 21st August, DDPOs highlighted the UK Government’s failure to respond to many of the questions put to it by the Committee throughout this process. They told the Committee of the systemic failure to support disabled people to live independently and to have access to social, educational, and employment opportunities.
This is the first time the UN Disability Committee is reviewing the UK’s progress in implementing the UN Convention on the Rights of Persons with Disabilities since the UK government ratified the Convention in 2009. DDPOs will tell the Committee that the government has ignored many of the questions put to it earlier this year as part of the review process. The Committee will consider the government’s response to its questions and the DDPOs’ observations before questioning representatives from the UK and devolved governments in Geneva later this week (23 and 24 August).
Eleanor Lisney, Director of Sisters of Frida says,
‘We have been calling out on the failure of the UK Government to fulfil obligations to disabled women since 2013 when we joined the UK CEDAW (Convention on the Elimination of all Forms of Discrimination Against Women) Workgroup and delegation in 2013 going to Geneva). We did the same when we went to UN in New York city for CSW (UN Commission on the Status of Women) the UKNGOCSW delegation and held a side event. It is vital that disabled women are represented in processes like CRPD reporting as too often our experience as disabled women is invisible.This is an opportunity to change this and show how the cuts and legal changes are affecting us.’
Sarah Rennie, who will be representing Sisters of Frida in Geneva says,
‘The UK Government’s response does not address how gender-specific policies incorporate the social model of disability to break down barriers, meet the needs of Disabled women, or require an intersectional approach. We urge the Government to immediately remove the “best interests” defence in the Serious Crime Act 2015 which restricts Disabled women from seeing their perpetrators of emotional abuse brought to justice, and to improve access to medical care for Disabled women including pre-natal and reproductive health services.’
The DDPOs’ submission was co-produced by Reclaiming our Futures Alliance (including Sisters of Frida ), Inclusion Scotland, People First Scotland, DRUK, Disability Wales, Disability Action Northern Ireland, British Deaf Association, and Black Triangle.
Notes to editors:
1) The UN Committee on the Rights of Persons with Disabilities investigation is assessing what steps the UK has taken to implement the UN Convention on the Rights of Disabled People. The committee is a body of experts, nominated and elected by governments. The majority of committee members are disabled people.
2) The committee postponed its scheduled assessment of the UK (originally due in 2015) to hold a special inquiry into complaints by DPPOs that the government’s welfare reform policies had violated disabled people’s rights. The current assessment looks at a much wider set of issues, including our laws on mental health and mental capacity, employment policies and education.
3) Before examining UK and devolved government representatives on Wednesday and Thursday the committee will meet with representatives of DDPOs to discuss their views on the formal written response already tabled by the UK government. The DDPOs have prepared their own submission as highlighted above.
4) Previous UN shadow reports from Sisters of Frida can be found at http://www.sisofrida.org/resources/
5) ROFA is an alliance of Disabled People and their organisations in England including Inclusion London, Equal Lives, Alliance for Inclusive Education, Sisters of Frida, National People First and Disabled People Against Cuts. For more information see: www.rofa.org.uk
6) more information about Sisters of Frida to be found at http://www.sisofrida.org
7) information on the status of disabled women in the Serious Crime Art 2015 can be found at http://www.sisofrida.org/resources/violence-against-women/
T: @sisofrida http://www.sisofrida.org
I became Homeless in early 2004.
This is what I had to say about it – again.
When not being summarily ignored and erased, WOC on Twitter discussing Depression and other forms of Neurodiversity and Disabilities are routinely shamed for not being the “strong” women we are stereotyped as by WP and other POC. *ANGER AS AN INDICATOR OF DISTRESS* is never considered.
So I did along with other related issues including racism in disability activism.
- “Will current blood quantum membership requirements make American Indians extinct?” – The National Museum of the American Indian
- “We Are Still Here” [PDF] – John R. Norwood, Nanticoke & Lenape Confederation
- “Status Indians, & ” – Storify by me as @NanticokeNDN
- “Blood Quantum: A Relic Of Racism And Termination” – Jack D. Forbes
- “Blood Quantum Does Not Determine Identity” Petition
- The Use of
#BloodQuantum – Room for Debate – nytimes.com
- Black NDNs – Tumblr
- “Revisiting Love in the Time of Blood Quantum” – Native Appropriations
- “Measuring Blood: The American Indian Blood Quantum” – nativelanguages.org
- Blood Quantum Earrings – Kristen Dorsey Designs
- “Blood Quantum Laws” – Wikipedia entry
- “Blood Quantum: A Ticking Time Bomb“ – littlewolf.us
- “What is a Blood Quantum Nazi” – authormiafisher.blogspot.co.uk
- Caitlin Fagan Reading Response #3 (intro2ces101.wordpress.com)
Gilbert’s Syndrome is another complex invisible illness / disability I was diagnosed with. It is a condition that goes a long way into explaining why many medical treatments and diet changes don’t work for me. Unfortunately no GP wants to document it, including the one who make the discovery.
The problem is that conventional medical wisdom dictates that GS is harmless despite suggested heredity links. However, there are studies that show that those diagnosed with the condition have the many of the same debilitating chronic illnesses in common (ex: ), the risk of recurring bouts of jaundice aside.
Following is a link to a UK-based GS Patients support organisation.
A few weeks ago, when thinking of interesting things I could write for this blog, I remembered a weird organisation that gathered some attention on the internet a month or two ago.
The organisation is called Straight Pride UK. It’s a strange group which believes that the tide of Gay rights has gone too far, and that now heterosexuals have become the oppressed minority. Essentially their philosophy is spun from the same reactionary cloth as “Men’s Rights activists” – the notion that, having essentially run Western society for most its existence, progressive demands that Christian white straight males share some of their total grasp on power is somehow a removal of their rights.
Anyway, I wrote to Straight Pride asking that they answer some questions. Stipulating that I was “a freelance journalist”, I sent them some questions, about what they do and what they believe.
About a week later…
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AND: Im with a Primary Care Mental Health Team. No changing staff like the old Community Mental Health Team. This Specialist is said to be the best in my area. They will be looking at Bipolar too instead of the Major Depression diagnosis I currently have (manic episodes are contradicting that and the 200mg Sertraline daily does nothing for them).
The Disability / Mental Health Assessor said it was vitally important to look at & treat the WHOLE person rather than looking at everything piecemeal. In her opinion the reason why CBT FAILED is because no one has considered anything but Major Depression and/or me being a hypochondriac when I have other health problems that are well-documented. She also couldn’t believe that no one I’d seen so far in last 3-4 years didn’t think to ask ME what *I* thought about my disabilities / problems! She said flat-out that CBT isn’t the cure-all for everything & especially for people with complex disability & illness.
If I am an Aspie – then other health issues could be sorted out simply by addressing that – CBT won’t help me.
- @CreativeCrip Test Result: Ritvo #Autism #Aspergers Diagnostic Scale-Revised #Aspie (thecreativecrip.wordpress.com)
- @CreativeCrip Rdos #Aspergers Test Result #Aspie (thecreativecrip.wordpress.com)
- Awkward in Person, Graceful on the Page (psychologytoday.com)
- Why do we have to suffer? (aspiecircusgirl.wordpress.com)
- Video | Asperger’s Syndrome vs. Nonverbal LD (enjoyhi5autism.blogspot.com)
- Asperger’s, agoraphobia and depression are destroying my life and my marriage (guardian.co.uk)
- New Book by AJ Scudiere Features Heroine with Asperger’s Syndrome (prweb.com)
- Fresh fuel reignites Asperger’s debate (sciencedaily.com)