It’s one month since Indian Country Today Media Network unexpectedly went on hiatus and ceased active operations. I’m in trouble. Most frustrations I have are not unique even as a multiply-disabled doubly neurodiverse Nanticoke and Lenni-Lenape Native American WOC, but they are humiliating.
I became Homeless in early 2004.
This is what I had to say about it – again.
When not being summarily ignored and erased, WOC on Twitter discussing Depression and other forms of Neurodiversity and Disabilities are routinely shamed for not being the “strong” women we are stereotyped as by WP and other POC. *ANGER AS AN INDICATOR OF DISTRESS* is never considered.
So I did along with other related issues including racism in disability activism.
- “Will current blood quantum membership requirements make American Indians extinct?” – The National Museum of the American Indian
- “We Are Still Here” [PDF] – John R. Norwood, Nanticoke & Lenape Confederation
- “Status Indians, & ” – Storify by me as @NanticokeNDN
- “Blood Quantum: A Relic Of Racism And Termination” – Jack D. Forbes
- “Blood Quantum Does Not Determine Identity” Petition
- The Use of
#BloodQuantum – Room for Debate – nytimes.com
- Black NDNs – Tumblr
- “Revisiting Love in the Time of Blood Quantum” – Native Appropriations
- “Measuring Blood: The American Indian Blood Quantum” – nativelanguages.org
- Blood Quantum Earrings – Kristen Dorsey Designs
- “Blood Quantum Laws” – Wikipedia entry
- “Blood Quantum: A Ticking Time Bomb“ – littlewolf.us
- “What is a Blood Quantum Nazi” – authormiafisher.blogspot.co.uk
- Caitlin Fagan Reading Response #3 (intro2ces101.wordpress.com)
Gilbert’s Syndrome is another complex invisible illness / disability I was diagnosed with. It is a condition that goes a long way into explaining why many medical treatments and diet changes don’t work for me. Unfortunately no GP wants to document it, including the one who make the discovery.
The problem is that conventional medical wisdom dictates that GS is harmless despite suggested heredity links. However, there are studies that show that those diagnosed with the condition have the many of the same debilitating chronic illnesses in common (ex: ), the risk of recurring bouts of jaundice aside.
Following is a link to a UK-based GS Patients support organisation.
|Total score||Language||Social relatedness||Sensory/motor||Circumscribed interests|
|Test taken by you on 10 June 2013||207.0||19.0||104.0||48.0||36.0|
|Test taken by you on 31 July 2013||210.0||21.0||93.0||57.0||39.0|
|Your average score is||208.5||20.0||98.5||52.5||37.5|
|Threshold values for suspected ASD||65.0||4.0||31.0||16.0||15.0|
|The average score for males with ASD (368 people took this test)||140.8||11.1||69.8||33.5||26.5|
|The average score for females with ASD (228 people took this test)||165.0||13.1||77.7||42.5||31.7|
|The average score for males with suspected ASD (1591 people took this test)||146.9||11.3||75.4||32.7||27.6|
|The average score for females with suspected ASD (1560 people took this test)||152.0||11.5||74.0||37.1||29.4|
|The average score for male neurotypicals (505 people took this test)||83.8||6.6||44.7||17.2||15.2|
|The average score for female neurotypicals (615 people took this test)||77.1||5.2||38.9||18.9||14.1|
If you wish to find out more about this test you can read the original research paper here
- Online Tests, Life on the Spectrum (lifeonthespectrum.net)
- The Self-Employed Aspie (musingsofanaspie.com)
- Temple Grandin on “Happy Aspies,” Autism, and Start-Ups (inc.com)
- Why do we have to suffer? (aspiecircusgirl.wordpress.com)
- What box do I fit in? Psychopath, Aspie, Schizoid? (schizoidspeculations.wordpress.com)
- Aspergers (codeproject.com)
- 10 Positive Traits of Asperger’s (marickstudioscincinnati.wordpress.com)
- Awkward in Person, Graceful on the Page (psychologytoday.com)
- Fresh fuel reignites Asperger’s debate (medicalnewstoday.com)
- On Being Aspie …. (myaspiefiles.com)
On Day 3 (July 17th), the Committee on the Elimination of Discrimination against Women considered the seventh periodic report of the United Kingdom on its implementation of the provisions of the Convention on the Elimination of All Forms of Discrimination against Women.
This is the day we were building towards with the oral presentations, lunch presentations – we gave the CEDAW committee our concerns to help them formulate questions to the those representing the UK government – the panel was led by Helene Reardon-Bond, Director of Policy, Government Equalities Office. The delegation of the United Kingdom in the room included representatives of the Government Equalities Office, the Home Office, the Department of Health, the Department for Work and Pensions, the Department for Business, Innovation and Skills, the Permanent Mission of the United Kingdom to the United Nations at Geneva, the Scottish Government, the Welsh Government and the Northern Ireland Executive.
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written July 14th 2013
Last week the Disability Intergroup* of the European Parliament met for the launch of a new report on Women and Disability prepared by rapporteur Angelika Werthmann (MEP). In her introductory speech Ms Werthmann explained the initiative had sprung from a (non-disabled) women’s group concerned to further include disabled women in their focus, but that for her (and many in the womens group), disability was an entirely new subject so preparing the report had been a learning curve. Personally I felt a bit wary of what she might say initially, but then before she expanded her presentation she made a specific invitation to Intergroup members and attendees to consider sending her further amendments which would be factored in the final publication.
Her report highlights the specific barriers to full participation and inclusion in society faced by disabled women, and was warmly welcomed by all attending…
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