Level Unlocked: Crisis Point

It’s one month since Indian Country Today Media Network unexpectedly went on hiatus and ceased active operations. I’m in trouble. Most frustrations I have are not unique even as a multiply-disabled doubly neurodiverse Nanticoke and Lenni-Lenape Native American WOC, but they are humiliating.

https://storify.com/MochaLisaccino/crisis-point

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STORIFY: Depression, Disability, and WOC #disabledWOC

 

When not being summarily ignored and erased, WOC on Twitter discussing Depression and other forms of Neurodiversity and Disabilities are routinely shamed for not being the “strong” women we are stereotyped as by WP and other POC. *ANGER AS AN INDICATOR OF DISTRESS* is never considered.

 

READ THE FULL TWITTER STORIFY
by me as @CreativeAspie

Another #invisibleillness #Disability Diagnosis: Gilbert’s Syndrome

Gilbert’s Syndrome is another complex invisible illness / disability I was diagnosed with. It is a condition that goes a long way into explaining why many medical treatments and diet changes don’t work for me. Unfortunately no GP wants to document it, including the one who make the discovery.

The problem is that conventional medical wisdom dictates that GS is harmless despite suggested heredity links. However, there are studies that show that those diagnosed with the condition have the many of the same debilitating chronic illnesses in common (ex: IBSFatigue), the risk of recurring bouts of jaundice aside.

Following is a link to a UK-based GS Patients support organisation.

http://www.gilbertssyndrome.org.uk

My 9-11 AND 7-7 Stories (pre Physical Disabilities)

 Originally posted to my @IconicImagery Journal on deviantArt as and when pre Physical Disabilities #Fate #Destiny #Synchronicity
 

9-11

Moment of Silence for Those Lost on United Airlines Flight 175 and at the World Trade Center

http://iconicimagery.deviantart.com/journal/Alive-and-Well-in-London-UPDATE-243131738 …

7-7

http://iconicimagery.deviantart.com/journal/Alive-and-Well-in-London-UPDATE-243131738 …

@CreativeCrip #Aspergers Referral

NEWZ!!

I’ve been referred to an #‎Aspergers‬ Specialist. I will see her several times in next month!

AND: Im with a Primary Care Mental Health Team. No changing staff like the old Community Mental Health Team. This Specialist is said to be the best in my area. They will be looking  at Bipolar too instead of the Major Depression diagnosis I currently have (manic episodes are contradicting that and the 200mg Sertraline daily does nothing for them).

 IMPORTANT NOTE:

The Disability / Mental Health  Assessor said it was vitally important to look at & treat the WHOLE person rather than looking at everything piecemeal. In her opinion the reason why CBT FAILED is because no one has considered anything but Major Depression and/or me being a hypochondriac when I have other health problems that are well-documented. She also couldn’t believe that no one I’d seen so far in last 3-4 years didn’t think to ask ME what *I* thought about my disabilities / problems! She said flat-out that CBT isn’t the cure-all for everything & especially for people with complex disability & illness.

If I am an Aspie – then other health issues could be sorted out simply by addressing that – CBT won’t help me.

@CreativeCrip Test Result: Ritvo #Autism #Aspergers Diagnostic Scale-Revised #Aspie

This particular Autism / Asperger Syndrome result can be seen online HERE

Scores with a yellow background are above the test threshold values. If your total score is above the threshold it may be worth getjavascript:;ting professionally assessed.

Total score Language Social relatedness Sensory/motor Circumscribed interests
Test taken by you on 10 June 2013 207.0 19.0 104.0 48.0 36.0
Test taken by you on 31 July 2013 210.0 21.0 93.0 57.0 39.0
Your average score is 208.5 20.0 98.5 52.5 37.5
Threshold values for suspected ASD 65.0 4.0 31.0 16.0 15.0
The average score for males with ASD (368 people took this test) 140.8 11.1 69.8 33.5 26.5
The average score for females with ASD (228 people took this test) 165.0 13.1 77.7 42.5 31.7
The average score for males with suspected ASD (1591 people took this test) 146.9 11.3 75.4 32.7 27.6
The average score for females with suspected ASD (1560 people took this test) 152.0 11.5 74.0 37.1 29.4
The average score for male neurotypicals (505 people took this test) 83.8 6.6 44.7 17.2 15.2
The average score for female neurotypicals (615 people took this test) 77.1 5.2 38.9 18.9 14.1

Average scores

If you wish to find out more about this test you can read the original research paper here

Click here to take this test yourself

Click here for a list of the available tests

 

@CreativeCrip Rdos #Aspergers Test Result #Aspie

Your Aspie score: 185 of 200
Your neurotypical (non-autistic) score: 37 of 200
You are very likely an Aspie

RDOS ASPIE QUIZ_2013.07.31 (PDF)

Rdos Asperger's Test Result Graphic (http://www.rdos.net/)

Rdos Asperger’s Test Result Graphic (http://www.rdos.net/)

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Day 3 UK Government CEDAW examination

Sisters of Frida

On Day 3 (July 17th), the Committee on the Elimination of Discrimination against Women  considered the seventh periodic report of the United Kingdom on its implementation of the provisions of the Convention on the Elimination of All Forms of Discrimination against Women.

This is the day we were building towards with the oral presentations, lunch presentations – we gave the CEDAW committee our concerns to help them formulate questions to the those representing the UK government – the panel was led by Helene Reardon-Bond, Director of Policy, Government Equalities Office. The delegation of the United Kingdom in the room included representatives of the Government Equalities Office, the Home Office, the Department of Health, the Department for Work and Pensions, the Department for Business, Innovation and Skills, the Permanent Mission of the United Kingdom to the United Nations at Geneva, the Scottish Government, the Welsh Government and the Northern Ireland Executive.

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At the European Parliament Disability Intergroup, Strasbourg

Sisters of Frida

written July 14th 2013

Last week the Disability Intergroup* of the European Parliament met for the launch of a new report on Women and Disability prepared by rapporteur Angelika Werthmann (MEP). In her introductory speech Ms Werthmann explained the initiative had sprung from a (non-disabled) women’s group concerned to further include disabled women in their focus, but that for her  (and many in the womens group), disability was an entirely new subject so preparing the report had been a learning curve. Personally I felt a bit wary of what she might say initially, but  then before she expanded her presentation she made a specific invitation to Intergroup members and attendees to consider sending her further amendments which would be factored in the final publication.

Her report highlights the specific barriers to full participation and inclusion in society faced by disabled women, and was warmly welcomed by all attending…

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@CreativeCrip in the Media: Society Guardian 17 Jul 2013

I’ve been mentioned in today’s Society Guardian Daily regarding @FridasSisters & #CEDAW2013#disabilityUK #disability #DisabledWomen #cedaw13

You can follow the Sisters of Frida Blog here.