@CreativeCrip in the media: #xmasathome #nyeathome interview GRAZIA Australia

NEW at thecreativecrip.com

I was interviewed recently for Grazia Australia regarding the #xmasathome #nyeathome Twitter campaign for people who are alone during the Holidays. Writer/Editor Vanessa Lawrence (@NessLawrence) gave me a great Christmas present in the form of a PDF of the final article as it appeared in print.

You can read it HERE

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#xmasathome, #nyeathome and #virtualnye 2012: In Defense of Humbug

 

I was interviewed recently for Grazia Australia regarding the #xmasathome #nyeathome Twitter campaign for people who are alone at Chistmas.

What Jay Smooth says in this vlog from 2009 sums up my general attitude about the Holidays perfectly.

 

#xmasathome, #nyeathome & #virtualnye 2012: @CreativeCrip suspended by Twitter, change of plan

I’m always alone and attempted suicide Christmas 2009.

Last year marked the first of what is turning out to be an annual Twitter event in supporting those of us who are either literally alone for the Holidays or feel isolated for whatever reason. Started by @prestontowers of prestoninstitute.com, I tweeted #xmasathome #nyeathome 2011 support as @Creative Crip  and blogged here about it.

New Year’s Eve was a bigger effort. Not onlydid I blog here (a few times in fact), I also did a feature on my latent Crip Island Posterous Blog replete with photos taken in-world during my own corresponding #VirtualNYE campaign event in the virtual world (aka metaverse) Second Life linked into a Google Hangout celebrating the new year as it was rung in across the globe.

Yesterday I woke up to the bitter reality of my @Creative Crip account being suspended without warning yet again. At first I decided to not bother, simply because of the significance of the @CreativeCrip identity to me and to others who rely on me for support. My mind was changed by sleeping on it and getting a few tweets from my followers. I was reminded of how many people look to me as a source of strength online despite my own fragility. I prefer to keep my Twitter activity compartmentalised, but when it comes to something like #xmasathome #nyeathome #virtualnye, keeping an eye on the bigger picture is vital.

So this year I’ll be tweeting support from @IconicImagery, the account for my Marketing Communications business and my new @GamerFems project (gaming, metaverse, feminism and all manner of geekery). I’ll also have another post or two about #VirtualNYE 2012-2013 in the next few days. The support is the thing that matters regardless of which account it comes from. So let it be written, so let it be done.

That’s how I roll.

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@CreativeCrip Suspension UPDATE – Funny olde world indeed

So… the third party who brought me into what is obviously a bogus situation and who couldn’t be arsed to reply to me on Friday now has this to say about my blog relating the details of my suspension:

“I dont even know why I am answering such silly nonsense.  THis just nonsense. The _____*whose ID I have temporarily forgotten) is someone I like talking to. @creativecrip is not. I blocked. “

O really?!!

That is QUITE the change from Friday where she happily tweeted my @CreativeCrip account, castigating him as an idiot and relating the woeful tale of him getting his followers to gang up on her (which others have seen, by the way thanks to searching my ID).

Funny that she’s tweeted a link to my blog calling me out – and has now protected her Twitter account!

Being a liar and a hypocrite aside, what can she possibly be afraid of?

One life to live: the irony of #benefitscamp

 

thecreativecrip.com exists solely to document the problems faced by disabled & otherwise ill people who are routinely denied the opportunity to prove to those that judge us, and ourselves, that we are useful. Shame that in the short time it’s been up the content is split between documenting my health problems and the never-ending nightmare of trying to get much-needed help from the government to become more independent & self-sufficient. I can guarantee you that despite the platitudes on high – none of the Cabinet have the faintest understanding why they are pushing so many of us to not even want to try to live our lives anymore. Quite frankly, its obvious the coalition govt & many in Opposition don’t care.

I have spent the better part of two years floundering, barely keeping my head above water as I begged for help and fought to not be forced into the usual dead-end workfare schemes. It was purely by chance that I caught wind of last weeks #BenefitsCamp event organised by FutureGov, a consultancy and social innovation incubator helping to shape the future of government through social innovation. The event itself was for “anyone up for helping fix/change/improve the benefits system – or even better create entirely new ways of doing things”.

The great irony of #benefitscamp is that the team dominated by people with disabilities and invisible illness won the Ideas pitch session. The supreme irony for me is that in the days leading up to the event I had a suicidal meltdown capped with my “I don’t want to live this life” blog post the day before. It took willpower I didn’t know I had to keep myself alive in the aftermath of the Prime Minister, with the full support of the House of Commons, invoking an archaic privilege and overturning Welfare Reform Bill amendments passed by the House of Lords.

The day of #BenefitsCamp I was trapped in bed watching the event on my mobile via the UStream App until it was time for the event participants to split up into teams and work on the shortlisted ideas. I had 2-3 hours of pain and insomnia-fueled sleep and very nearly called it quits as I struggled to stay conscious. Working together virtually aided by Skype and the #benefitscamp livestream, my team came up with a solution that would allow disabled (and not-yet-disabled) people to get much-needed support when able to work & the desperately needed compassionate helping hand when they can’t – but without the pitfalls of the existing DWP process.

The proposed Universal Credit and other benefit “reforms” being pushed through Parliament are no more than plasters on an already festering wound. End-users have not been given a genuine opportunity like the one provided by FutureGov to offer a compromise that would help us to help ourselves, despite the Coalition government’s claims to the contrary. FutureGov have set the standard for virtual participation and collaboration. My team’s success at #BenefitsCamp shows what disabled people are capable of when we are allowed to work with much-needed adjustments.

Related information from some of my team-mates:

Benefits Camp 2012 – Workgroup 7  (worklifebalance.thecreativecrip.com)

Benefits Camp – Confidence-building (janetdavis.posterous.com)

Not idle, just unsupported (thecreativecrip.com)

FutureGov (http://wearefuturegov.com)

My #VirtualNYE Campaign supporting #NYEathome : This is how I roll.

I’m listening to fantastic music by RED as I battle against technology and epic Twitter Fail Whaling this last late afternoon of 2011.

In addition to my usual New Year’s Traditions to set a good tone for the coming New Year, I have initiated #virtualNYE – my own campaign in support of the brilliant Twitter-based #NYEathome initiative based in Australia run by Twitterers @prestontowers @Steph_Philbrick & @Doc_Samantha for those of us alone or feeling low during the holidays.

My Crip Island sim in Second Life has a Twitter Wall displaying the #NYEathome feed and there’s also a livestream of worldwide video countdowns. I’m setting up a Flickr photogallery, but below is a snapshot to give you a taster.

VirtualNYE on Crip Island in Second Life

#VirtualNYE on Crip Island in Second Life

Online Events for those of us at home (multi-tasking is the name of the game!):

Kasabian LIVE from London’s O2 Academy: http://www.youtube.com/TheO2NYE

Earthcam’s New Year’s Eve 2012 – Worldwide:  http://www.ustream.tv/earthcam

Second Life: Music, Dancing, Fireworks and more. Check Destinations and Events listings on the secondlife.com site as well as more comprehensive details in-world. This year also sees the new addition of Linden Realms, the SL equivalent of a gaming experience.

For Gamers: Lord of the Rings Online, SkyRim and World of Warcraft have numerous events going on in-world. Check the usual spots and variosu Guild / Kin postings online and player chat channels..

Daria Musk’s GooglePlus New Year’s Eve Hangout – Worldwide: http://newyearshangout.com/

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#virtualnye – a new @CreativeCrip #creativecrip campaign

New campaign from me: #virtualnye

Best #virtual places to be on New Year’s Eve: @Twitter, @lotro and @SecondLife (esp @OccupySL )
#virtualnye #nyeathome #disabilitynormal

More to come…