I‘ve had many crises over the past few years which chipped away at my resolve to stay positive and be grateful that things could never get any worse than they were in those moments. Becoming disabled is a challenge I never anticipated. I have followed the discussions of the Welfare Reform Bill in the Commons and now the House of Lords and it has literally driven me to despair. What hope can ordinary people have if a disabled Peer, Baroness Tanni Grey-Thompson, is publicly disrespected and her concerns about the inaccessibility of the chamber summarily dismissed by her esteemed not-yet-disabled colleagues? Continue reading
It seems I can kiss my #ESA goodbye with the 1yr limit. Submitted yet another review pack for Xmas and STILL have not heard back. #WRAG has been humiliating & useless. A4E – they of benefit busters infamy. Found Venture Wales on my own – they saw me once, made promises & then vanished. I’m being punished despite pushing myself to do everything that I was ordered to do.
Then again everyone’s attitude is “eff off home” despite the fact that I’m domiciled here and have paid top tax pre-disability. I also have nowhere to go back to in the US even if I wanted to. Would rather die than have to go back to situations I fought hard to escape from.
I’m newly disabled – it’s tough enough having to cope with all the things I can’t do and need help with and the pressure & upset brought on by the DWP & Atos has made things much worse. I’m tearing my hair out with worry over becoming homeless again. Council homeless unit & housing programme admin pathetic. Too bad the suicide attempt Xmas 2009 failed.
And for any assholes that want to snipe about Tweeting, blogging & work – I’m trapped in bed, soaking wet and have slowly tapped this out on my mobile while flat on my back. I’ll crash unconscious another 3 or 4 times before I might have the strength to force myself up. Give me perfect health and the #ukbiz & #ukcare support I need to be self-employed and you can take my ESA and housing benefit. I hate what my life has unexpectedly become.
Note: For further background, review the section “The ‘Me’ You Don’t Know” and my Atos, DLA & ESA Category posts on the my experiences trying to get help.
I’m listening to fantastic music by RED as I battle against technology and epic Twitter Fail Whaling this last late afternoon of 2011.
In addition to my usual New Year’s Traditions to set a good tone for the coming New Year, I have initiated #virtualNYE – my own campaign in support of the brilliant Twitter-based #NYEathome initiative based in Australia run by Twitterers @prestontowers @Steph_Philbrick & @Doc_Samantha for those of us alone or feeling low during the holidays.
My Crip Island sim in Second Life has a Twitter Wall displaying the #NYEathome feed and there’s also a livestream of worldwide video countdowns. I’m setting up a Flickr photogallery, but below is a snapshot to give you a taster.
Online Events for those of us at home (multi-tasking is the name of the game!):
Kasabian LIVE from London’s O2 Academy: http://www.youtube.com/TheO2NYE
Earthcam’s New Year’s Eve 2012 – Worldwide: http://www.ustream.tv/earthcam
Second Life: Music, Dancing, Fireworks and more. Check Destinations and Events listings on the secondlife.com site as well as more comprehensive details in-world. This year also sees the new addition of Linden Realms, the SL equivalent of a gaming experience.
Daria Musk’s GooglePlus New Year’s Eve Hangout – Worldwide: http://newyearshangout.com/
- My New Years Traditions (2012) #NYEathome #virtualNYE #creativecrip (thecreativecrip.com)
- Twitter’s Christmas solace (smh.com.au)
- Tweets a solace for the lonely (theage.com.au)
- Twitter throws a lifeline to those at home alone and lonely during the festive season (smh.com.au)
At long last, the identity for my Iconic Imagery / Iconic Imagery Creative business has finally come together – Two years in the making because of my health and other personal issues. Continue reading
I’ve set up a new Facebook page and Twitter account that will be linked to this blog. Both will be focused mainly on disability, mental health, carers and politics. I will also endeavour to share other information which may be useful.
Facebook Page (I need a minimum of 25 “likes” to secure a pretty URL)
Thank you for your support!
You have the right to remain silent. Anything you say can & will be used against you along with things you never actually said. #lifeonline