Another day ending in y where I tackle ableism. Plus, my perspective as a Housebound #disabledWOC on the latest round of ‘Hashtag Activism” bashing.
When not being summarily ignored and erased, WOC on Twitter discussing Depression and other forms of Neurodiversity and Disabilities are routinely shamed for not being the “strong” women we are stereotyped as by WP and other POC. *ANGER AS AN INDICATOR OF DISTRESS* is never considered.
So I did along with other related issues including racism in disability activism.
- “Will current blood quantum membership requirements make American Indians extinct?” – The National Museum of the American Indian
- “We Are Still Here” [PDF] – John R. Norwood, Nanticoke & Lenape Confederation
- “Status Indians, & ” – Storify by me as @NanticokeNDN
- “Blood Quantum: A Relic Of Racism And Termination” – Jack D. Forbes
- “Blood Quantum Does Not Determine Identity” Petition
- The Use of
#BloodQuantum – Room for Debate – nytimes.com
- Black NDNs – Tumblr
- “Revisiting Love in the Time of Blood Quantum” – Native Appropriations
- “Measuring Blood: The American Indian Blood Quantum” – nativelanguages.org
- Blood Quantum Earrings – Kristen Dorsey Designs
- “Blood Quantum Laws” – Wikipedia entry
- “Blood Quantum: A Ticking Time Bomb“ – littlewolf.us
- “What is a Blood Quantum Nazi” – authormiafisher.blogspot.co.uk
- Caitlin Fagan Reading Response #3 (intro2ces101.wordpress.com)
AND: Im with a Primary Care Mental Health Team. No changing staff like the old Community Mental Health Team. This Specialist is said to be the best in my area. They will be looking at Bipolar too instead of the Major Depression diagnosis I currently have (manic episodes are contradicting that and the 200mg Sertraline daily does nothing for them).
The Disability / Mental Health Assessor said it was vitally important to look at & treat the WHOLE person rather than looking at everything piecemeal. In her opinion the reason why CBT FAILED is because no one has considered anything but Major Depression and/or me being a hypochondriac when I have other health problems that are well-documented. She also couldn’t believe that no one I’d seen so far in last 3-4 years didn’t think to ask ME what *I* thought about my disabilities / problems! She said flat-out that CBT isn’t the cure-all for everything & especially for people with complex disability & illness.
If I am an Aspie – then other health issues could be sorted out simply by addressing that – CBT won’t help me.
- @CreativeCrip Test Result: Ritvo #Autism #Aspergers Diagnostic Scale-Revised #Aspie (thecreativecrip.wordpress.com)
- @CreativeCrip Rdos #Aspergers Test Result #Aspie (thecreativecrip.wordpress.com)
- Awkward in Person, Graceful on the Page (psychologytoday.com)
- Why do we have to suffer? (aspiecircusgirl.wordpress.com)
- Video | Asperger’s Syndrome vs. Nonverbal LD (enjoyhi5autism.blogspot.com)
- Asperger’s, agoraphobia and depression are destroying my life and my marriage (guardian.co.uk)
- New Book by AJ Scudiere Features Heroine with Asperger’s Syndrome (prweb.com)
- Fresh fuel reignites Asperger’s debate (sciencedaily.com)
It is with regret that I am having to close down my self-hosted WordPress site thecreativecrip.com and revert to my old site which I continued to maintain at thecreativecrip.wordpress.com as a backup. Thank you to all my thecreativecrip.com readers for their support and I hope you will subscribe there. One of the perks of doing this is that it will be easy for others to share my work and re-blog through the WordPress.com platform itself.
I’ve had problems with my US-based web host, intrahost.com, for almost a year now after three years of outstanding service. It appears that the man behind the venture, Greg Kuiper, doesn’t care about his business now that he has a cushy job with popular hosting control panel techies cPanel. Paid invoices remain unprocessed yet I keep getting new ones charging me for “Parking Fees” and the same things that I’ve already paid for. At last check the total of nefarious charges was almost at $300. Domain renewals were not taken care of, which I and the few clients I had have to pay the consequences for. Help Desk tickets have gone unanswered for MONTHS. affiliate earnings remain locked in my account which I can no longer access as the intrahost.com website went offline a few weeks ago never to return. The Facebook Page has disappeared a while ago – or perhaps I was blocked from it for raising flags about web outtages that lasted more than a day with no action or notice by Intrahost. Greg is even a Facebook Friend (Ha!) – but ignores me at every turn now. No more Mister Nice Guy.
On top of all that, neither myself nor my clients are able to get the transfer codes we need to move our active domains elsewhere. My Iconic Imagery business identities and those of The Creative Crip are fortunately listed as being owned by me but I have no control over them at all now. I’m not sure what’s going on because although one domain expired, I’m not able to buy it through another registrar – as it seems to be locked with me still listed as the owner. My web hosting package obviously remains active but in my opinion it would be unwise to carry on making use of it with the owner of the servers having vanished into thin air (in a manner of speaking).
I trusted Greg Kuiper with my business and those of friends and professional connections. For just over 3 years the service was outstanding. I never saw this problem coming – and even transferred domains to Intrahost.com from a popular service I had used for years. Make no mistake, this can happen to anyone at any time and with any web host. There are a lot of one-man bands fronting as larger operations. This most definitely is the case with Intrahost.com. There are also many unscrupulous larger operations. The best anyone can do is research and think critically.
I contacted the Better Business Bureau who are effectively useless. I note that people are starting to complain to them about Intrahost.com but not getting anywhere through the BBB. Now I have to raise the issue with ICANN – and continue to let people know what happened as I try to rebuild.
Jason Arnopp @JasonArnopp (Author, scriptwriter. Doctor Who, Sarah Jane, Friday 13th) is working on a book regarding professional (Fiction) writers and Depression. He asked me to contribute. This is what I had to say…
On Writing & Depression: Creative Down-swings
A well-meaning new-found long-lost relative decided to comment on my NaNoWriMo 2011 Facebook entry referring to my struggles to participate because of Major Depression: “truth is I’m strategic…” she wrote. “…the goal is achievable you have to trust yourself to make it happen.” Her sentiments are typical of the simple-minded inspiration porn that I am forced to put up with routinely. My response is always that I do what I can, when I can, but unfortunately more often than not it means struggling immensely to do not very much at all. I give myself pep talks and formulate strategies to try and be productive to no avail.
The greatest irony for me as a writer living with Depression has always been that I get my best ideas and am the most prolific when in a severe down-swing. I find that writing fiction, even Harry Potter fan fiction, is therapeutic in a way that Cognitive Behavioural Therapy has never been for me. I even managed to put this into one of my stories with a fan fiction-writing protagonist who proposed that “sometimes fiction serves a purpose in enabling people to live out their fantasies, purge their own demons or perhaps set a standard for themselves. It was only when people confused fantasy with reality that there was a problem.”Self-insertion? I won’t deny it. I’ve learned an awful lot about myself and my illness through writing and making use of my own lived experience (especially post-diagnosis in 2009). This in turn informs others including those who live with it – something still sorely needed to combat the stigma of mental illness. I would also agree that I lose myself in the gloriousness of creation process. This is even more pronounced during manic cycles of insomnia. Perhaps that’s why I have so many epic tales that remain unfinished after starting them nearly a decade ago and have failed to live up to the potential I’ve been told that I have. Depression has impacted every aspect of my life for good or ill, and my interests and ambitions as a professional writer are no exception.
Lisa J. Ellwood
@IconicImagery ( & Communications account)
#NaNoWriMo 2011 (#disability #spoonie #mentalhealth) – #amwriting (thecreativecrip.wordpress.com
#NaNoWriMo – Day 2: Not #fitforwork or anything else… (thecreativecrip.wordpress.com
@CreativeCrip in the media: #xmasathome #nyeathome interview GRAZIA Australia (thecreativecrip.wordpress.com
So… the third party who brought me into what is obviously a bogus situation and who couldn’t be arsed to reply to me on Friday now has this to say about my blog relating the details of my suspension:
“I dont even know why I am answering such silly nonsense. THis just nonsense. The _____*whose ID I have temporarily forgotten) is someone I like talking to.
@creativecrip is not. I blocked. “
That is QUITE the change from Friday where she happily tweeted my @CreativeCrip account, castigating him as an idiot and relating the woeful tale of him getting his followers to gang up on her (which others have seen, by the way thanks to searching my ID).
Funny that she’s tweeted a link to my blog calling me out – and has now protected her Twitter account!
Being a liar and a hypocrite aside, what can she possibly be afraid of?
A few of my Twitter followers have noticed that my @CreativeCrip account has been suspended.
This was unexpected and completely without warning. I am of the opinion that this has occurred because of malicious reporting on the part of adults who find it impossible to either block or ignore those whom they don’t like or disagree with or both. The circumstances are thus:
On 27th September someone I used to follow (but who still appeared in my timeline) said
“Depression doesn’t kill you, you do.”
I retweeted this along with my own comment that I found that assertion to be patronising and unhelpful. The following day he had a go at me – knowing that his rabid followers will immediately act upon any beef that he decides to have with other people. This is what he does – he gets his followers to go after people he doesn’t like or disagrees with.
Someone popped up and had a go at him. She doesn’t even follow me but decided to call him out (to me), saying that he and his followers had attacked her and accused her of being disablist for the observation that “disability is only one aspect of identity”. She had quite a bit to say to him in the main and kept copying me in.
Why I don’t know.
I was in middle of tweeting that she needed to keep me out of her sustained rants at him when my account was suspended.
It was *that* quick.
Mine was the only account suspended. Not hers. Not his.
Fast-forward several hours later. I tweeted the third party moaner from 1 of my 2 business accounts after the @CreativeCrip suspension & said “my @CreativeCrip acct is suspended thanks to the good Rev. In future pls keep me out of your chats w him. Thanks.” No response. She blocked me. I then looked through her timeline and saw that she was making an attempt to cosy up to him again, trying to get back in his good graces. Call me stupid, but there is no way in hell I would ever suck up to anyone who threw me under a bus and in so public and odious a way. Someone has suggested that this could be quite a clever little ploy by both parties – suffice it to say there is nothing that wouldn’t surprise me at this point especially considering who is involved. It’s not the first time something like this has happened on Twitter (or other social media platforms) and it sure won’t be the last.
It’s a funny olde world indeed.
So here I am fighting to get the suspension lifted. I have put too much hard work into @CreativeCrip to simply give up and possible start again: (1) that account has been mention in the Society Daily listings in The Guardian quite a bit and (2) my work through that account and The Broken of Britain also earned me a nod from Left Foot Forward in “Nomination for most influential left-wing thinker: The disabled rights community“
All are noted on my LinkedIn Profile here: uk.linkedin.com/in/iconicimagery
Needless to say – at the moment I feel like I have had enough of Social Media, and Twitter especially.
Life online brings out the best and worst in people and often when you least expect it, with Social Media copping more than its fair share. Every day is a struggle being in pain or feeling sick on the inside while you look fine on the outside. It’s hard enough to explain to someone who really has no clue just how debilitating chronic pain and invisible illnesses are. It’s even worse when the person that needs convincing is another person with disabilities, a Carer or self-proclaimed disability advocate passing judgement on that which they have very little knowledge of, if any at all. Continue reading
Sometimes you just need someone to hold your hand and mentor you through things.
This is one of those times.